Sunday, June 21, 2009

Another swollen bug bite for Olivia and her Segmental NF-1

Olivia has an area on her forearm the size of a silver dollar that is pink, hot, swollen and hard. She woke up with it this morning and said it itches. I gave her Benadryl when she woke up because she had peed and told me about her arm. She said it didn't help. I am noticing a pattern. Her last really bad bug bite was on her left eyelid and this whatever it is is on her left arm. She has her Segmental Neurofibromatosis on her left side. I have also noticed that she is starting to lose pigment on her right arm. I think that when we take her to her genetics follow-up appointment I want them to give us a referral to a specialist is Neurofibromatosis.

2 comments:

Tripletmom said...

Does Segmental NF make people itchy? I thought it caused pain?

Um... could the bladder control problem be from SNF?

Queenbuv3 said...

It can affect your skin and nerves. I don't know about causing itchiness but there can be tumors that are just under the skin that cause swelling and redness.