Wednesday, August 25, 2010
Tuesday, August 24, 2010
Stephen has had a huge increase in seizures in the last 6 months. He was having one or two breakthrough seizures a year since he was diagnosed 3 years ago and he has had about 6 in the past year. He just started puberty in June. He has had 3 since June. Has anyone else had this happen with their child once they hit puberty? Is it a phase? Could it be that he needs a new medication? For now we are increasing his night time dose to 4 pills and will get his levels done in two weeks.
Tuesday, August 3, 2010
I am constantly reading and caring deeply about the lives of other parents who have children with special needs. I very frequently take the time to comment on others' blog posts and facebook posts to give support or advice and let them know they aren't alone. I don't get that kind of support myself and it hurts and makes me feel very isolated. It makes me not want to even bother posting anything because I don't get a lot of feedback.